Friday, September 12, 2014

NY Ostomy Supplies Bill Now on the Governors Desk

A Giten Erev Shabbos,

We are very pleased to say that the Ostomy Supplies Bill has now been called up by the Governors office and is now on his desk. All it needs now is for him to sign it into law.

We asked you to write to his office in June and again at the beginning of last month, and we know that a number of you and your friends have done so. However, We are told that it would be good for him to hear from you and your family and friends again now, and this is quite urgent as he only has till September 23rd to sign the Bill into law, or to veto it.

Please help us clear the last hurdle; as before a simple message containing the following should suffice:Please sign into law Assembly Bill A10140 and Senate Bill S7893 that concern insurance coverage for the vital supplies that people who have undergone ostomy surgery must rely on.

The easiest way is to email the message to the following address: legislative.secretary@exec.ny.gov (This person will send your message to the appropriate Counsel to the Governor)

You may also contact the Governor's office by phone (518) 474-8390 or mail:
The Honorable Andrew M. Cuomo
Governor of New York State
NYS State Capitol Building
Albany, NY 12224

In the same time, as a reminder, if you live in New York, and did not sign the petition yet, please do it now, it takes less than a minute and it gives a boost for the campaign.
Even though you might not have an Ostomy B'H, but there so many others out there suffering of Crohn's disease or Ulcerative Colitis who are going through with that struggle, let’s try to help them!
Sign it here Petitioning Governor Cuomo to sign into law NY Ostomy Supplies Coverage Bill and send it to others to sign it as well.

Lastly, you could leave a message on his website at: www.governor.ny.gov by going to the site and clicking on 'contact'.

Contact us if you have any questions, thank you for all your help and support, we are almost there!

Sunday, August 31, 2014

Re: NY Ostomy Supplies Coverage Bill

To all our members:

As you know, we are waiting to hear that Governor Cuomo has signed the Ostomy Supplies Coverage Bill into law and we are reasonably confident that he will do so in the next several weeks. As we mentioned in our previous emails regarding this issue, the Bill covers all commercial insurances but not those that are state-sponsored.

The situation with regard to coverage by state-sponsored programs is as follows:

​​

  • MEDICAID
Traditional Medicaid covers ostomy supplies, albeit at relatively low reimbursement fee levels. However, on a progressive basis, beneficiaries are being moved into Managed Medicaid policies and we have heard that some of them may not cover ostomy supplies. If any of you or you know of Medicaid beneficiaries who have an ostomy but do not have coverage for their ostomy supplies please let us know.
​​

  • CHILD HEALTH PLUS
Surprisingly, this program for children whose families are of very limited means, does not cover ostomy supplies and never has. Although a last minute Bill requiring coverage was introduced at the end of the recent legislative session, it was not passed. We need examples of problems that this has caused to support asking the Governor to add coverage in his budget.
​​

  • HEALTHY NEW YORK
We now understand that this program is to continue but will only be available to small employers and not the self-employed. We have heard, however that it has extremely low utilization limits for ostomy.

If you or you know someone who had problems with adequacy of ostomy supplies coverage by any of the above programs, please let us know as soon as possible and with as much detail as possible. We have an opportunity to try to influence the people who are responsible for these programs and for a time have the services of a specialist in this field and there is unlikely to be another occasion when we have such a chance to improve coverage.


As a reminder, if you live in New York, and did not sign the petition yet, please do it now, it takes less than a minute and it gives a boost for the campaign. 

Even though you might not have an Ostomy B'H, but there so many others out there suffering of Crohn's disease or Ulcerative Colitis who are going through with that struggle, let’s try to help them!
Sign it here Petitioning Governor Cuomo to sign into law NY Ostomy Supplies Coverage Bill and send it to others to sign it as well.

Please help us clear the last hurdle, and many thanks for all your help so far; contact me if you have any questions.

Thursday, July 24, 2014

Petitioning Governor Cuomo to sign into law NY Ostomy Supplies Coverage Bill

As we informed you, the New York Ostomy Supplies Coverage Bill has passed in both the New York Senate and Assembly; all that is needed now is for Governor Cuomo to sign it into law.  

It would be a great help if you could communicate your support of the bill and to urge him to sign it into law.
Therefore we created an online petition asking the Governor to sign it.

Please sign it here Petitioning Governor Cuomo to sign into law NY Ostomy Supplies Coverage Bill and send it to others to sign.

Please help us clear the last hurdle, and thank you for your all your help so far; contact me if you have any questions.
Thanks again!

Thursday, July 17, 2014

JCCSG Event #6



Hi all,

We are currently in the planing stages of our next symposium,and we welcome your input and suggestions. 

We have had numerous requests to arrange a women's only educational event where many women's issues affected by Crohn's disease and Ulcerative Colitis can be freely discussed. We have been working during the past few weeks to make this happen and woulds appreciate your opinion and concerns regarding the topics to be addressed.  Also, we still have not decided on location; what do you say?

We're working hard to get this done; please help us out and send us an email or call us at 718-63-JCCSG (718-635-2274) with your advice and comments.

We thank you in advance!

We'll keep you posted as details are finalized

Tuesday, June 24, 2014

NY Ostomy Supplies Coverage Bill

Dear Member

We are delighted to inform you that the New York Ostomy Supplies Coverage Bill has now passed in both the New York Senate and Assembly; all that is needed now is for Governor Cuomo to sign it into law.  

It would be a great help if you could communicate your support of the bill and to urge him to sign it into law.

I should point out that there were some changes to the Bill Including the numbers for the Bill in both the Senate and the Assembly.

The easiest way to send the message is to email it to the following address:
legislative.secretary@exec.ny.gov

A long message is not necessary but it needs to include something along the following lines: 

Subject: NY Ostomy Supplies Bill S7893/A10140

Message: 
The Honorable Andrew M. Cuomo,
Governor of New York State

I am writing to ask that you sign into law Assembly bill A10140 and Senate bill S7893/A10140 that concern the provision of more extensive insurance coverage for people who have undergone ostomy surgery."

You may also contact the Governor's office by phone (518) 474-8390

Please help us clear the last hurdle, and thank you for your all your help so far; contact me if you have any questions.

Thanks again! 

Wednesday, April 30, 2014

New Webcast: "Advances in IBD: An Update for Patients“ by CCFA

Hello Everyone,

We know we’re late on this one… but still…. As always we try to provide as much information and education to our group members, therefore we are excited to inform you about an New Webcast: "Advances in IBD: An Update for Patients“ by our great friends at the CCFA (Crohns & Colitis Foundation of America).

 

Advances in IBD: An Update for Patients

TONIGHT - Wednesday, April 30, 2014
8:00-9:00 pm EST 
(5:00-6:00 pm PST)

Register NOW for this free educational event! 

CCFA's "Advances in IBD Clinical & Research Conference" is an annual medical education event for physicians, researchers, and other healthcare professionals. This special webcast is an overview, geared toward patients, of the most important clinical research discussions from the 2013 "Advances" conference.

Topics include the use of diagnostic tests, surgery for IBD, progress in the areas of genetics and the microbiome, as well as a look at the future of IBD care. Participants will hear from a leading expert in the field of IBD research, and have the opportunity to ask questions. Register to watch this webcast today!



Speaker:
Maria T. Abreu, MD, AGAF
University of Miami
Miller School of Medicine
Miami, Florida


Join the conversation about this program via Twitter! #AdvancesinIBD

Tuesday, April 8, 2014

Pesach Notifications


Hi all,

As the Yom Tov Pesach is around the corner, we would like to remind you again, You should exercise extreme caution and consult with your doctor and Rabbi/Rav before making a decision not to take a medication on Pesach. As important as one treats the laws of Kashrus, one is also obligated to treat the Mitzva of "V'Nishmartem M'Od L'Nafshotaichem" - "Take care of your health". Therefore, under mo circumstances should an individual forego taking a prescribed medication of Pesach (and during the year...) without first consulting one's physician and Rav for a careful analysis of the situation. Remember! We are eating Matzoh's... Don't take a chance and please be responsible!

And for the 'Arba Kosos' remember, if you are taking Flagyl - Metronidazol you are not allowed to drink any alcohol! and same goes to a lot of other antibiotics.
All other IBD patients should please double check with your doctor if the effectiveness of your medication will not be decreased or render them useless while mixing them with alcohol.

Please forward this email to all patients and their families you know.

We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

Wednesday, March 12, 2014

Purim Alert!

Hi all,

We're posting this alert early enough... it's a friendly reminder about the danger of mixing certain medications with alcohol. In some cases, alcohol interactions may decrease the effectiveness of medications or render them useless. in other cases, alcohol interactions may make drugs harmful or even toxic to your body. even in small amounts!

We witnessed many patients taking Flagyl - Metronidazel and they drank alcohol having very unpleasant and some even life threatening side effects, Therefore if you're taking Flagyl - Metronidazel, do NOT drink! (we pointed out one Antibiotic, but there are many more other medications with the same danger).

In any case, each and every Crohn's and Colitis patient should double check with their doctor if drinking alcohol while taking your medication is safe, and if you're allowed to drink even a drop!

Please be responsible! do it for your self and your family.

A Freilichen Purim! and Tumid B'Simcha!


Tuesday, January 14, 2014

Mazel Tov! Dr. Rahmani

We would like to wish a hearty Mazel Tov to our dear friend 
Dr. Rabin Rahmani, M.D.
Director of Medical Education and Research Department of Gastroenterology of Maimonides Medical Center, And Physician at Brooklyn Gastroenterology and Endoscopy Associates, 
Upon the birth of a Baby Girl.


Dr. Rahmani, a speaker at our past symposium is a strong advocate for our patients and a source of advice and guidance for JCCSG members.

​We wish him much Nachas from this child and from his family along with health, wealth and abundant happiness. May he be Zoche to fulfill his mission of improving the quality of life for people affected by Crohn's and colitis and for their families with success and Brucha always.

In the name of the entire Board and all our members,

Yoely Drummer
Founder & Executive Director 

Monday, January 13, 2014

IBD Research Funding at Stake: Take Action Now

IBD Research Funding at Stake: Take Action Now

This week, the House of Representatives and the Senate will work to pass funding bills for the entire government for fiscal year 2014. Currently, Congress is considering providing funding for IBD research at the Department of Defense’s Peer-Reviewed Medical Research Program (PRMRP)
 The Peer-Reviewed Medical Research Program actively:
  • Provides expanded research at the Department of Defense
  • Highlights the impact of IBD on service members

This research, if funded, will work to find new biomarkers for IBD.

Contact your legislator today and ask them to include IBD in the Peer-Reviewed Medical Research Program.

Wednesday, January 1, 2014

Mazel Tov Rabbi Follman

We would like to wish a hearty Mazel Tov to our dear friend 
Rabbi Eluzer Duvid Follman 
JCCSG Board Member

Upon the wedding of his daughter. as we all know Rabbi Follman is someone who has put his heart and soul into assisting Crohn's and Colitis sufferers for many years, and so skillfully conducted our evenings with much tact.

The Wedding is tonight at The Palace, 780 McDonald Ave. Brooklyn NY 11229.

May he have much Nachas from this couple and from his whole family along with health, wealth and abundant happiness. Let him be Zoche to fulfill his mission of improving the quality of live for people affected by Crohn's and Colitis and for their families with success and Brucha at all times.

Wishing you in the name of the entire Board and all our members

Yoely Drummer
Founder & Executive Director 

Thursday, December 26, 2013

Interview About the NYS Ostomy Supplies Insurance bill

Hi everyone,

There is a short interview with Rabbi Eluzer Duvid Follman, JCCSG Board Member, regarding the NYS Ostomy Supplies Insurance bill, on Kol Mevaser, 212-444-1100, then press 1 - 1 - 4. The Interview is in Yiddish.

How can you help?

Online Petitions to sign:

Please sign! And make sure your friends and family are signing.



Thanks!

סאיז דא אן אינטערוויו אויף די בארימטע "קול מבשר" טעלעפאון ליניע מיט הרב אלעזר דוד פאללמאן, אן אקטיווער באורד מעמבער אין אינזער ארגענעזאציע, איבער די פעטיציע דרייוו וואס מיר העלפן ארויס אז די אינשורענס קאמפעני'ס זאלן באצאלן אלעס פאר אונזערע ברודער וואס דארפן צוקומען צו אן "אסטאמי" און גרינגער מאכן זייער לעבן

די אינטערוויו קען מען הערן אויף זייער ליין, 212-444-1100 און דריקט 1, נאכדעם נאכאמאל 1, און דערנאך 4

Tuesday, December 24, 2013

ביטע שרייבט אונטער די פעטיציע

טייערע אידן הארציגע ברודער, אידן רחמנים בני רחמנים!
  
מיר ווענדן זיך צו אייך מיט א בקשה פון טיפן הארצן. אין די זעלבע צייט וואס איר זענט פריש און געזונט, זענען אבער פארהאן פילצאליגע אידישע קינדערליך וועלכע גייען דורך פיינפולע מיטמאכענישן און פיין. צווישן זיי זענען פארהאן אידישע קינדער, טאטעס, מאמעס, און אינגע קינדערלעך וועלכע האבן צוליב סיי וועלכע אישו - ווי ליידנדיג פון די ביטערע מחלה, קראונס, קאלייטעס, און אנדערע פיזישע פראבלעמען, -  געמוזט צוקומען צו א "אסטאמי", וואס דאס איז א זעקל! - דער פרעצעדור גייט צו אז דורך אן אפעראציע ווערט ארויסגעשניטן טיילן אדער פילע מאהל די גאנצע קישקע, אדער אנדערע קערפער טיילן - און אט דער 'בעג' טוט העלפן דער מענטש ארויסגיין.
  
די קאסטן פאר אזא בעג ציען אריין אין אסטראנאמישע סומעס, וואס זייער אסאך פון די פאציענטן ווערן אפגעזאגט דורך די אינשורענס-פירמעס וועלכע ווילן נישט צאלן דערפאר, וואס טראצדעם וואס ווען זיי צאלן ווען פאר די סופלייען פארן "אסטאמי" וואלטן עס זיי געשפארט אסאך געלט! וויבאלד א מענטש וואס האט נישט די ריכטיגע סופלייען קומט אן מער אפטער צו באזוכן אין שפיטאל, וואס דאס קאסט אין פאקט פאר די אינשורענס פירמעס אסאך מער געלט.
  
און אויסער דעם, ווען דער מענטש פארמאגט מיט זיך די ריכטיגע סופלייען דאן טוט דאס אים פיל פארגרינגערן אינעם טאג-טעגליכן לעבן. א מענטש אן די סופלייען געפונט זיך געווענליך איזאלירט און אפגעזונדערט פונעם מענטשהייט, און דערצו פארלירט ער זייער אסאך ארבעט שעה'ן.
  
דעם קומענדיגער יאנואר, וועט אי"ה אויפגעברענגט ווערן א 'ביל' אינעם ניו יארק אסעמבלי און דערנאך אינעם סענאט, וועלכע וועט פארלאנגען די אינשורענס פירמעס, אריינגערעכנט די אינשורענס פירמעס וועלכע ווערן געשטיצט דורך די רעגירונג, צו באצאלן פאר די וויכטיגע סופלייען.
  
דעריבער בעטן מיר זיך צו אייך פערזענליך: נעם אראפ איין מינוט פון אייער צייט, און שרייבט אונטער דער 'פאטיציע' צו די אסעמבלי לייט און סענאטארן אז זיי זאלן עס שטיצן, און אזוי ארום וועט איר בס"ד פארגרינגערן דאס לעבן פון אזויפיל אידישע קינדערלעך.
  
  
אויב האט איר נאך א מינוט, דאן שרייבט אויך אונטער דא:
GoPetition: New York State Ostomy Supplies Insurance Bill


א הארציגען דאנק. אין דעם זכות זאלט איר און אייערע פאמיליע נישט וויסן פון קיין צער, און קיינמאל נישט וויסן וואס דאס מיינט, נאר קענען לעבן געזונטערהייט אין פרידן.

מער אינפארמאציע קענט איר זעהן אויף 

Friday, December 20, 2013

New York State Ostomy Supplies Insurance Bill

Hi Everyone,

A Bill has been introduced to the New York State Assembly (A8137) and the New York State Senate (S5937) to require health insurances to cover the cost of "Ostomy Supplies". A majority of people with an Ostomy will have to wear a Pouching system for the rest of their lives. Still, some major medical insurances, including some that are state sponsored, do not cover these essential supplies. the provision of suitable products enables people to resume normal, productive lives, in addition to saving avoidable treatments and hospitalizations with all their attendant issues.

In January 2014 legislation supported by our friends at the United Ostomy Associations of America (UOAA) and the Wound Ostomy Continence Nurses Society (WOCN) will be introduced in the New York Legislature, and will require all major insurances to cover Ostomy supplies. The United Ostomy Associations of America (UOAA) represents people who have undergone Ostomy surgery, and the Wound Ostomy Continence Nurses Society (WOCN) represents the specialist who care for people who are living with an Ostomy.

We ask that you do whatever you can to ensure passage of this important legislation. (Note: At this time, this proposal is for the New York State residents only, If you are not a New State resident, but have a relation or friend in New York who can support this cause, please forward them this email).

For more information about an Ostomy, visit What is an Ostomy?

How can you help?

Online Petitions to sign:

Thanks in advance for your help!



Monday, December 16, 2013

New Webcast: "Managing the Costs of Your IBD Care" by the CCFA

Hello Everyone,

As always we try to provide as much information and education to our group members, therefore we are excited to inform you about an New Webcast: "Managing the Costs of your IBD Care" by our great friends at the CCFA (Crohns & Colitis Foundation of America).

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Managing the Costs of Your IBD Care
A free webcast
Wednesday, December 18, 2013
8:00PM-9:00PM PM ET (5:00PM-6:00PM PT)



Register today for this free educational event! 
The cost of care in inflammatory bowel diseases (IBD) is significant, and many families struggle with expenses. This webcast, co-presented by CCFA and

​​
NeedyMeds, will provide patients and loved ones with tips for managing healthcare costs. Several programs that can help cover the cost of treatment for both uninsured and underinsured patients will be described. The webcast  will help improve understanding of insurance coverage and changes in the Affordable Care Act. Speakers will also discuss disability coverage in IBD. 

Presented by:

Karen Hanson, RN, CNP
Mayo Clinic, Rochester, MN

Karen Hanson, RN, CNP has been a nurse practitioner in the Division of Gastroenterology and Hepatology at Mayo Clinic in Rochester, MN for the past 12 years and has extensive experience caring for patients with IBD and other GI disorders. She serves on the Nursing Initiative Committee of CCFA. 

Susanne Benouna
Mayo Clinic, Rochester, MN

Susie Benouna has been a medical secretary in the Division of Gastroenterology and Hepatology at Mayo Clinic in Rochester, MN for 13 years. She provides secretarial support for three physicians and one nurse practitioner, all of whom specialize in the care of patients with IBD. Ms. Benouna also serves a core operational role for issues related to medication coverage, such as copay assistance, patient assistance programs, cards, vouchers, and specialty pharmacy.


Elizabeth Messenger
NeedyMeds, Gloucester, MA
Elizabeth Messenger is the Director of Outreach & Education at NeedyMeds (www.needymeds.org). She works to increase awareness of NeedyMeds' resources through facilitating various advocacy and outreach efforts. She develops and maintains strategic partnerships with other nonprofit organizations and communities that support NeedyMeds' mission. She also oversees the NeedyMeds webinar program, which includes conducting monthly webinar tutorials explaining how to navigate the website’s resources, as well as hosting special topic sessions on relevant topics.


The following will be discussed:
  • Discuss the financial burdern of IBD
  • Review resources available to assist in cost of medications and care
  • Improve understanding of insurance coverage
  • Become familiar with Affordable Care Act (ACA) changes
  • Review rights for disability, medical leave, and social security benefits

Space is limited -- register online today!


Co-presented by:
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